orphan disease

What is Lissencephaly?

Lissencephaly is a rare neurological disorder that affects the development of the brain. It is characterized by the lack of folding in the brain's cerebral cortex, which is the outer…
Child with Lissencephaly

Erica vs. Pneumonia

October 2000 - Only a month into the school year and Erica missed a week of school! Why? She caught pneumonia again and this time spent three days in the hospital.…
Kids Nebulizer

Home Medical Equipment

We had a lot of home medical equipment. Friends would joke about it looking like a hospital and then suddenly we had a daunting collection of medical supplies and equipment.…