Erica vs. Pneumonia
October 2000 - Only a month into the school year and Erica missed a week of school! Why? She caught pneumonia again and this time spent three days in the hospital. This made three years in a row that she wound up with pneumonia after going back to school. This was the 1st time she had […]
Home Medical Equipment
We had a lot of home medical equipment. Friends would joke about it looking like a hospital and then suddenly we had a daunting collection of medical supplies and equipment. We're Gonna' Need a Bigger House We eventually had to relocate to keep up with Erica's care. Particularly, we needed a single-story house because she […]
An Exchange Student, and an Open Home
People often called us crazy—usually with a laugh—in disbelief at how full our lives already were. Between caring for Erica, managing daily routines, and juggling family life, we somehow still said yes when the opportunity to host an exchange student for the summer arose. Anaise joined our family through a summer exchange program from Argentina. […]
A Personal Narrative
Our 13 year old daughter, Catherine, wrote and read it to her class at St. Mark's School so they could understand Lissencephaly. We couldn't be anymore proud! Personal Narrative on Lissencephaly by Catherine Bayliss 10/18/98 Do you believe in angels? Well, maybe you should read this story, even if you do believe. There is an […]
Fun Halloween Campouts
Incredibly, with all of her issues, Erica was happy nearly all of the time, especially when on a Halloween Campout. 1999 Halloween Campout Here we are at Yogi Bear Campground near Hagerstown, MD. This year Erica went as The Great Pumpkin being peddled round by me as some kind of hippy dude. Camping in Style Another […]